Spending this New Years Eve with my three favorite people...

Our big excitement of the night is making chocolate chip cookies!!

 

 

From the Johnson family, we hope you have a safe and happy New Year!!

 

 

Sanai says "Hush up, so we can eat these COOKIES!"

 

 

We got home last night around 8:00pm and have been resting at home since then.  When we left the hospital Sanai's fever had just gone down and luckily it hasn't shown back up.  The doctors said her fever was caused by some sort of virus because all her labs came back clean.  She also had an EEG which analyzed her brain waves and everything came back normal.  We are VERY overly sensitive to her fever and are checking her constantly.  But besides being a bit fussy this morning when she woke up, which isn't like her at all, she has been in good spirits. 

She's not eating as much as she usually does but we have been trying to push fluids so she doesn't get dehydrated.  She seems to be back on her normal nap schedule also.  She slept a lot while we were in the hospital because we were told seizures tend to wear them out completely.  She was such a trooper, she was poked and proded so many times.

The Neurologist told us to probably expect more seizures but that we hope she will grown out of it.  She is at a slight risk for epilepsy when she gets older but we can't worry about that right now.  When/If she has another seizure we need to time it and if it lasts longer than 5 minutes we need to call 911 and if she doesn't wake up after 30  minutes we need to call 911.

It felt really good when the pediatric specialist who came and hour and a half to pick us up told my husband that I was a really good mama and that I stayed calm and was there for Sanai when she was going through her seizure.  That really wasn't the case with the first two seizures at all!  It felt good to hear a total stranger say something like that!  Needless to say, we hope she is on the mend.  And I want to thank everyone for their prayers.

At our local hospital, she was resting before the Vanderbilt team arrived to transport us

Leaving our local hospital, after her second seizure.  She was still not awake but stabilized.


 

Her little feet...we were waiting to be moved from the ER to a regular room

 

 

 



Sleeping after a morning bottle

 

 

We both squeezed on this tiny pull out bed!

Looking rough on this fine morning! LOL

 

Only my child would be this cute as a spaghetti head.  The tech asked me to send her this picture because she looked so cute!

Update

I received a call yesterday I had been dreading.  Sanai has been acting very normal the past week.  Let me back up and say that on December 5th while in Georgia for my father in laws funeral, Sanai had her second seizure.  She also was diagnosed with RSV which is what caused the spike in her temp resulting in her seizure. RSV turned into a touch of pneumonia so our dr put her on some antibiotics as a Pre caution.

I got a call around 11am yesterday that she had had another seizure at daycare and that they had called 911.  I rushed over there and found her still coming out of it.  I took her to our regular dr and they ran several tests trying to find out what was causing the fever but couldn't find anything so he sent us on to River Park hospital where a pediatric specialist was going to come via ambulance to transport us to Vanderbilt Children's hospital in Nashville.

They arrived around 3:30 and Sanai was doing well.  She was up and babbling so they went ahead and hooked up her ECG stickers to her chest and did the IV. Not long after they were there she looked at me, cried out in pain and her eyes rolled back in her head and starting having another seizure! They quickly gave her some medicine to calm her brain and loaded her into their ambulance.

We arrived at Vanderbilt around 6pm and was visited by the doctor and a neurologist. We were told they would keep her over night for observation and do an EEG in the morning to look for abnormalities.  They are working on getting the EEG machine up and running as I type and are hoping for a consult from the neuro doc around noon depending on his schedule.

Hopefully the pediatric doctor can also figure out why she's had a temp for so long with no obvious sign of infection.  We are hoping to go home today but Ill try to keep my blog updated when I know things. In the mean time, please say prayers for my sweet baby girl,

I haven't uploaded pictures in awhile - especially to facebook because I had to take the app off my phone so I had enough memory to take MORE pictures.  So here is some pics that sum up the past few weeks.



Doing her favorite thing...eating Puffs, watching cartoons







Looks like she's stealing that can of tomato sauce! ha ha



 

How can Granny's always get them to fall asleep in positions like this??





Being naughty, trying to turn off the lights.  (Paw Paw says she has a fruit salad on her head!)





Micah and Santa at his Christmas party.  He told him he DID NOT want an airplane

At the Christmas Parade...I swear Micah had a great time although you can't tell by his face

Front and center view, thanks to Ms. Dawn :)



It's a little late in the game, but I wanted to offer up some meaningful suggestions in case you have some last minute shopping to do.  I don't know about you, but my home is over saturated with TOYS!  And although my kids love toys I'd like to start explaining to them how lucky they are that they don't want for basic needs like food, water and a roof over their head.

Here are a few things I came up with:

Donate to the victims of Sandy by visiting www.redcross.org

Visit Olive Tree Branch to purchase a product where a certain percent of your purchase will go to an adopting family.  www.olivetreepromise.com

Order a bag of coffee (might be too late for shipping, but the brewery is in Murfreesboro, TN if you live in the area).  www.justlovecoffee.com

Make a donation to a non-profit organization in the name of your loved one to something they are interested in.

Order a FLEX watch - 10 colors, 10 causes.  I got one in BLUE of course :) www.flexwatches.com




Visit this page for ways to give back: http://www.newparent.com/news/gifts-for-a-good-cause/

Order a pair of TINY TOMS - some of these are so adorable!!  http://www.toms.com/youth/tiny?view=all

Consider donating or volunteering as a family at an organization like Green House Ministries.  Micah has grown out of a lot of his clothes and of course he's got a million toys he doesn't play with anymore.  I'll be donating to their food pantry this year as well.  www.greenhousemin.org

I stumbled acrossed this website through another website that I check and was inspired to add this page as a place to shop.  It's called Worthwhile Wear and the proceeds from items purchased go to stop slavery.  This is their mission:

"Preventing entrance into and rescuing girls from the sex slave trade by addressing the root cause, poverty, and by providing women and girls an alternative means of income and a NEW life."

Some of their products are beautiful, check out those metal bangels!  I've got my eye on a neckalce too.  Check them out.  http://worthwhilewear.org/







Any other great ideas, leave a comment!!

Daddy's Girl

It was to be expected that Sanai was pretty attached to me in the beginning.  I spent 5 weeks maternity leave with her day and night primarily by myself.  Tommy was mid-football season when we traveled to Ethiopia so he was pretty busy the first 2 months that Sanai was home.

But recently he has been home more and spends a lot of time with her. Her eyes light up when he comes in the room and she reaches for him to pick her up and it melts my heart.  Tommy is definitely the fun dad, he's always on the floor playing with the kids.  They are usually always crawling all over him and you can tell he loves it.

I'm so glad that they were able to bond so quickly and easily.  She already has him wrapped around her little tiny finger!  He says she's not dating until she's 30. LOL